*note -- this is more of a both of us blog but since it directly relates to Trio I have posted it here*
Yesterday we went to go see a dermatologist at the request and referral of Trio's pediatrician. She was concerned about the white spots he has all over his body and that it may be vitiligo (or what is most commonly known as "what Michael Jackson had"). It's mainly on the parts of his body that clothes cover with the exception of some around his neck and she just wanted to see if there was a way to head it off. We got and meet with the guy and he is pretty convinced that is what it is. There are ways to hopefully stop it from spreading, so what we are doing now is a topical cream twice a day; it was going to be two but one is hella expensive and he was like “If it is too much you can just use the one” and yeah it's a lot since there is no generic version of it so you have to go with the name brand stuff—and since the doctor said the one would be fine we're going with the one.
He said it would take time so he is going to meet back up with us in six months and we can see how the process is going from there and decide if we can continue that route or have to go with more aggressive forms of treatment. And so now we have another doctor on top of the pediatrician and cardiologist It is as he said, this unlike neurofibromatosis (which they think he has because they think I have it even though I've never been tested) this is a more noticeable thing and it does disfigure. And as we all know kids are cruel so if we can make it to where he doesn't have discolored spots all over his face and gets made fun of. Growing up the way I did I of course don't want him to be bullied nor do I want him to be a bully. I want him to be a nice kid and he is—he is outgoing, friendly, charismatic (most of which he gets from his dad and I was introverted as a kid for the most part) so even if it came to that maybe it wouldn't be a big deal because the kids would already like him.
I'm just so sad for him. I do firmly believe that God (or whatever entity that you pray to and believe in) never gives you more than you can handle. You never really know how strong you have to be until you're in the position and I've had a lot of those and I've managed to make it through almost unscathed. My strength is more inner because I don't want to be one of those people who goes through life broadcasting their battle scars and what they've been through. I mean, if you ask me I will answer honestly, but it's more of a matter of fact manner than anything else. But it just seems that almost every medical anomaly one can get he has. Pyloric stenosis happens in every 4/1000 baby (usually a first born male but still) and he had it. VSD or any heart murmur is more common but what is not is it not eventually growing together or getting smaller as the months progress. His didn't which is why he had open heart surgery at four months to repair it.
Then there was the MRI we had to get done at two years because of the neurofibromatosis which is pretty much a benign genetic disorder that results in cafe au lait spots all over the body (which we both have) and moles (which I have) and there is something that can show up in the eyes. The doctor yesterday mentioned in some cases there can be issues with growths in your face and also gastrointestinal issues (which can sometimes result in needing a colonscopy before the recommended age which is what I need I just have to fight to get it covered on my insurance). The results there were inconclusive but based on what he has it leans towards he does have it. He has bad teeth, which is no biggie as long as we are diligent with his brushing he should be good. And now this. It is frustrating because I feel like the road has already been so hard for him with all the stuff that happened when he was just a baby and now there is concern over this skin disorder.
As my sister said “He's fine – it's not bothering him and it doesn't affect how he is.” And I do believe that since he is so friendly that if it gets to that really visible level he'll have friends who have his back who are like “No he's cool, you're a jerk, don't make fun of my friend or I'll kick your butt!” And while it is a little disheartening to have to be concerned about this it boils down to this (which is one of favorite sayings lately)--”Suck it up buttercup.” So I'm going to put my war face on and I'm going to do what I need to do to combat this and hopefully make it not an issue. Use the power of positive thinking to see the goal and press on because that's what needs to be done. And at the end of the day, with everything that he has been through and may go through, I know that my son, like me, will be a fighter. And that is reassuring to know that he has the mentality for whatever life will throw at him and that he will fight, and knowing my son, it will be with a smile
Wednesday, March 27, 2013
Wednesday, February 27, 2013
Five = Change
We had Trio's 5 year check up today. I was expecting what most parents expect at this one -- lots and lots of shots. I've heard the horror stories of the 5 year old shots and it was horrible. I was terrified that it was going to be that way.
As it turns out, he was up to date on his shots. So I worried and panicked for nothing. Go fig. Not that I'm complaining mind you because no one wants their kids to have shots. I was just expecting today to turn out differently which is pretty much going to be my mindset for the next year because that what five is to me.
Five is one of the many game changing year it appears. They head to kindergarten in most cases, memories form etc (most of this you can see on my blog was well). But what is amazing to me is how almost instant this change in Trio was. It is like five came and *bam*! Personality exploded and the normal traits of five year old began including bargaining, talking a lot more, and lots of sassing with a sprinkle of back talk.
Now for the most part Trio is a good kid. He can be a bit of a challenge like any kid and he likes to really test his boundaries with saying "No" to us a lot which is pet peeve of mine. He is also taken to throwing fits when he can't get what he wants right away or you take something from him (example a smart phone he is playing with or my Fire).
Most of this can be chalked up to being tired because as much of a big boy as he is (and thinks he is) if he's tired it shows. If he needs a nap it show especially when you suggest taking a nap and he melts down into this ball of crying and rage that is so grand you think we told him we were dropping him off at an orphanage. When that happens my response is always "Yeah you're totally not helping your case that you do not need a nap right now."
But also part of it is him changing and morphing and having more of a stronger personality. Getting back to the smart phone/Fire convo, it is a bit amazing he can work all of this so well. True most kids can just because this is the techie world that we know live in but he is not evening doing what most kids do with them. There are books he knows are his that he reads on my Fire, games he knows specifically are for him so when he can play for them that is what he goes it.
He also has this new thing I've noticed or heard about where if you ask him something silly or ask him to do something silly he won't. Not only will he not but he will make you feel small/stupid that you asked. Examples are where one time Albert saying a line from Turk from the movie Tarzan asked Trio to go "The fun has arrived!! You say it Trio!!". And from the other room you hear a scoff (I kid you not a scoff) and Trio replied "I'm not saying that."
Then when I was at work there was a story with bath time. Trio has noticed since school that he is a boy. And the only other "boy" around is his Daddy. As such bath, getting dressed, all that jazz he wants Daddy to do. So I hear that one time when Albert was getting his clothes my sister was teasing him about someone else getting him out. She was in the bathroom talking to him asking "Well, can Ya-Ya (her nickname from him) get you out?"
"No, Daddy."
"Can Nica get you out?"
"No, Daddy."
"Can Kendall get you out?" And at this KaCee (my sister) said that he kind of bent his head down in a way that if he wore glasses he would have been peering over the top of them at her and said very matter of factly, "Kendall's not here."
o.0 Mind...blown.
And it's not that he recognized she wasn't there just the inflection that I was told was in his voice that pretty much said "I'm not stupid." And that is what I mean about the personality exploding. Last year he would have giggled about it but now it's very serious. And he does that with a lot of things. He's very independent for the most part and likes to do things for himself to the point where sometimes he will get mad if you do. Not that I mind because as well all know I didn't want a Mama's Boy in the sense that he was tied to my apron strings at 18. It's just...bittersweet to see because it shows me undoubtedly that yes--he is growing up.
And five is the precursor to all this. So I'm getting ready for it because if these random bursts of his personality are any indication the next 13 years will be far from uninteresting.
As it turns out, he was up to date on his shots. So I worried and panicked for nothing. Go fig. Not that I'm complaining mind you because no one wants their kids to have shots. I was just expecting today to turn out differently which is pretty much going to be my mindset for the next year because that what five is to me.
Five is one of the many game changing year it appears. They head to kindergarten in most cases, memories form etc (most of this you can see on my blog was well). But what is amazing to me is how almost instant this change in Trio was. It is like five came and *bam*! Personality exploded and the normal traits of five year old began including bargaining, talking a lot more, and lots of sassing with a sprinkle of back talk.
Now for the most part Trio is a good kid. He can be a bit of a challenge like any kid and he likes to really test his boundaries with saying "No" to us a lot which is pet peeve of mine. He is also taken to throwing fits when he can't get what he wants right away or you take something from him (example a smart phone he is playing with or my Fire).
Most of this can be chalked up to being tired because as much of a big boy as he is (and thinks he is) if he's tired it shows. If he needs a nap it show especially when you suggest taking a nap and he melts down into this ball of crying and rage that is so grand you think we told him we were dropping him off at an orphanage. When that happens my response is always "Yeah you're totally not helping your case that you do not need a nap right now."
But also part of it is him changing and morphing and having more of a stronger personality. Getting back to the smart phone/Fire convo, it is a bit amazing he can work all of this so well. True most kids can just because this is the techie world that we know live in but he is not evening doing what most kids do with them. There are books he knows are his that he reads on my Fire, games he knows specifically are for him so when he can play for them that is what he goes it.
He also has this new thing I've noticed or heard about where if you ask him something silly or ask him to do something silly he won't. Not only will he not but he will make you feel small/stupid that you asked. Examples are where one time Albert saying a line from Turk from the movie Tarzan asked Trio to go "The fun has arrived!! You say it Trio!!". And from the other room you hear a scoff (I kid you not a scoff) and Trio replied "I'm not saying that."
Then when I was at work there was a story with bath time. Trio has noticed since school that he is a boy. And the only other "boy" around is his Daddy. As such bath, getting dressed, all that jazz he wants Daddy to do. So I hear that one time when Albert was getting his clothes my sister was teasing him about someone else getting him out. She was in the bathroom talking to him asking "Well, can Ya-Ya (her nickname from him) get you out?"
"No, Daddy."
"Can Nica get you out?"
"No, Daddy."
"Can Kendall get you out?" And at this KaCee (my sister) said that he kind of bent his head down in a way that if he wore glasses he would have been peering over the top of them at her and said very matter of factly, "Kendall's not here."
o.0 Mind...blown.
And it's not that he recognized she wasn't there just the inflection that I was told was in his voice that pretty much said "I'm not stupid." And that is what I mean about the personality exploding. Last year he would have giggled about it but now it's very serious. And he does that with a lot of things. He's very independent for the most part and likes to do things for himself to the point where sometimes he will get mad if you do. Not that I mind because as well all know I didn't want a Mama's Boy in the sense that he was tied to my apron strings at 18. It's just...bittersweet to see because it shows me undoubtedly that yes--he is growing up.
And five is the precursor to all this. So I'm getting ready for it because if these random bursts of his personality are any indication the next 13 years will be far from uninteresting.
Tuesday, February 5, 2013
Trio's 5th
So on Friday we celebrated Trio's 5th birthday and on Sunday we had the party. It is still amazing to think that I have a five year old because as cliched as it sounds, the time really has flown. It seems like just yesterday I gave birth and was holding my baby boy for the first time and through all the trials and tribulations we made it here. And he's not a baby anymore -- he's my big boy (or my little man). *tear*
He had a good birthday. We didn't do a lot because of the party we were having and there was going to be a moon bounce there so I just took mini cupcakes to his school (mini since I remember the mess from being a daycare teacher) and shared it with his class. He enjoyed it true for the cupcakes but also for me being there since I don't always get a chance to go have lunch with him.
Then his party--we ordered a bouncy castle (well rented) and that was just the bee's knees to the kiddos. They stayed in it pretty much all the party and we had to force them out when it got dark not because they were there to get it (since they left it over night and we ended up having it there for almost a day. Only got charged for the four hours though--winning!!) so I count that as a great party all around. Plus to rent it was only about $150 which is much cheaper than going to a bouncing place. So yeah, probably going to do that from now on for our parties. Plus the food was good (thank you HEB deli trays) and everyone had a great time. My little odd man didn't worry about opening his presents during the party so we ended up doing it after everyone left. He still enjoyed everything he got of course: monster trucks, Star Wars helmet and mask, a Transformer truck, the movie Despicable Me, and a new Mobi game (Jack and the Neverland Pirates). All around a great day and a wonderful way to celebrate his 5th.
Happy birthday Trio. We love you very much.
He had a good birthday. We didn't do a lot because of the party we were having and there was going to be a moon bounce there so I just took mini cupcakes to his school (mini since I remember the mess from being a daycare teacher) and shared it with his class. He enjoyed it true for the cupcakes but also for me being there since I don't always get a chance to go have lunch with him.
Then his party--we ordered a bouncy castle (well rented) and that was just the bee's knees to the kiddos. They stayed in it pretty much all the party and we had to force them out when it got dark not because they were there to get it (since they left it over night and we ended up having it there for almost a day. Only got charged for the four hours though--winning!!) so I count that as a great party all around. Plus to rent it was only about $150 which is much cheaper than going to a bouncing place. So yeah, probably going to do that from now on for our parties. Plus the food was good (thank you HEB deli trays) and everyone had a great time. My little odd man didn't worry about opening his presents during the party so we ended up doing it after everyone left. He still enjoyed everything he got of course: monster trucks, Star Wars helmet and mask, a Transformer truck, the movie Despicable Me, and a new Mobi game (Jack and the Neverland Pirates). All around a great day and a wonderful way to celebrate his 5th.
Happy birthday Trio. We love you very much.
Wednesday, January 23, 2013
Trio's Better!!
On Tuesday (since Monday was MLK and a holiday) Trio went back to school and stayed all day. He was fever free on Thursday of last week so I sent him on Friday *but* they sent him home because he wasn't acting like himself and he had a wet cough. At the time I was pretty upset because I had just fallen asleep and I didn't want to end up in court for truancy. Ultimately I mean I understand why they did it but I was pretty steamed since I was all "It's seriously only been 15 minutes that he has been at school!" When I picked him up though I did see what they meant. He wasn't himself.
But now he seems to be adjusting again which is great. I mean I am over the moon that my soon is better and no longer has a fever because it was scary. This is the longest since year one that he has been sick and also pretty much the first time and I was like Okay what do we do? It gets stuck in this cycle of:
he has a fever--give him medicine--but now he's not fever free without medicine so he can't go to school tomorrow--feeling better in the middle of the day looking good--fever again at night that requires medicine--CRAP!!
So when he was fine with no fever but a wet cough on Friday I just gave him Wal-green's grand Mucinex (because I honestly see no difference between Wal-Green's brand and the high price stuff aside from one is not going to hurt me in the pocket book as much) and he has been right as rain since. Which makes me very happy. ^_^ Especially since his birthday is around the corner and who wants to be sick on their birthday? NO ONE!!
And on that note I will certainly post again about that because it is an imporant one...he's turning 5!!! o.0
But now he seems to be adjusting again which is great. I mean I am over the moon that my soon is better and no longer has a fever because it was scary. This is the longest since year one that he has been sick and also pretty much the first time and I was like Okay what do we do? It gets stuck in this cycle of:
he has a fever--give him medicine--but now he's not fever free without medicine so he can't go to school tomorrow--feeling better in the middle of the day looking good--fever again at night that requires medicine--CRAP!!
So when he was fine with no fever but a wet cough on Friday I just gave him Wal-green's grand Mucinex (because I honestly see no difference between Wal-Green's brand and the high price stuff aside from one is not going to hurt me in the pocket book as much) and he has been right as rain since. Which makes me very happy. ^_^ Especially since his birthday is around the corner and who wants to be sick on their birthday? NO ONE!!
And on that note I will certainly post again about that because it is an imporant one...he's turning 5!!! o.0
Tuesday, January 15, 2013
Trio's Got the Fever!!
Almost a week later and Trio is still kind of sick. And by kind of I mean that his fever is still coming and going, he is coughing, and is home again for the second day in a row.
This sucks.
Not so much because he's home because I love my time with my boy. It's just I can't get this fever to go away and it is this vicious cycle because he can't go to school until he is fever free for 24 hours. But he can't get fever free without medicine especially when it reaches the "magic" number of 100.1 and since I don't want his brains to bake I have to give him the good stuff. So he may be out for a full week. Which means I have to call the school to make sure this whole abscence counts as one so I don't get truancy put on me and sent to court. :/
Such a horrible, horrible cycle. :(
The good news is it is not that flu. (Which, by the way can I interject, the way they check for flu SUCKS!!?? A big ol' cotton swab up both nostrils are you serious? I would much prefer blood being drawn that is one and done. Not sticking up one side and while he is grabbling with that sticking it up the other one. I was thinking that would make *me* want to punch someone I can only imagine what Trio felt like when his nurse did that.) Anyways it is just a good old fashioned cold and cough. So yay...I guess. I mentioned on my Facebook it is the dingy grey lining because it sure as hell ain't silver.
Otherthan that his attitude is still the same when he's not laying down because his fever is hitting him. In fact I have to get him to lay down so he can get better sooner. We shall see how this plays out. Until next time stay healthy and don't forget to wash your hands!!!
This sucks.
Not so much because he's home because I love my time with my boy. It's just I can't get this fever to go away and it is this vicious cycle because he can't go to school until he is fever free for 24 hours. But he can't get fever free without medicine especially when it reaches the "magic" number of 100.1 and since I don't want his brains to bake I have to give him the good stuff. So he may be out for a full week. Which means I have to call the school to make sure this whole abscence counts as one so I don't get truancy put on me and sent to court. :/
Such a horrible, horrible cycle. :(
The good news is it is not that flu. (Which, by the way can I interject, the way they check for flu SUCKS!!?? A big ol' cotton swab up both nostrils are you serious? I would much prefer blood being drawn that is one and done. Not sticking up one side and while he is grabbling with that sticking it up the other one. I was thinking that would make *me* want to punch someone I can only imagine what Trio felt like when his nurse did that.) Anyways it is just a good old fashioned cold and cough. So yay...I guess. I mentioned on my Facebook it is the dingy grey lining because it sure as hell ain't silver.
Otherthan that his attitude is still the same when he's not laying down because his fever is hitting him. In fact I have to get him to lay down so he can get better sooner. We shall see how this plays out. Until next time stay healthy and don't forget to wash your hands!!!
Wednesday, January 9, 2013
First Sick Day
Well we reached our a milestone today: our first get sent home sick day. I got the call from the nurse around noon that he wlhad a fever and was waiting there to come home. So of course I hauled button there (as much as you can in the rain without skidding out) and arrived at the school to find him splayed out on the coat in the nurse's office with ice packs all over him (because he wouldn't drink water). You could tell he was feeling miserable because he was laying still, he didn't jump up to greet me with a happy "Mommy!!" and he wouldn't sing to his songs on the way home. :( It was very sad all around.
So he came home and got some medcine along with some water (because you know I made him) and into his jammies. Then he bundled into his YaYa's bed (my sister) and watched Tarzan until I made him take a nap. And nap he did. Woke up all sweaty on his back and his fever had gone done. I gave him some more medicine to be sure (since he is giong to have to take tomorrow off anyways) and then since then he has acted heaps better. He is walking around talking wanting to play Wii, which I turned down until at least tomorrow LOL (my little gaming nerd). So we went through it well enough. Honestly, I'm surprised it took him a whole semeters before he was sent home sick. He hadn't been around kids constantly until school and yet all last year he was fine. So while I was sad he was sick, I'm happy it took as long as it did for it to happen. Now he's doing okay -- he is haning around his Daddy wanting to play on his phone. And if that doesn't say he's feeling better... well I don't know what would. ^_^
So he came home and got some medcine along with some water (because you know I made him) and into his jammies. Then he bundled into his YaYa's bed (my sister) and watched Tarzan until I made him take a nap. And nap he did. Woke up all sweaty on his back and his fever had gone done. I gave him some more medicine to be sure (since he is giong to have to take tomorrow off anyways) and then since then he has acted heaps better. He is walking around talking wanting to play Wii, which I turned down until at least tomorrow LOL (my little gaming nerd). So we went through it well enough. Honestly, I'm surprised it took him a whole semeters before he was sent home sick. He hadn't been around kids constantly until school and yet all last year he was fine. So while I was sad he was sick, I'm happy it took as long as it did for it to happen. Now he's doing okay -- he is haning around his Daddy wanting to play on his phone. And if that doesn't say he's feeling better... well I don't know what would. ^_^
Wednesday, January 2, 2013
New Year, Same Trio
So here is a new year and once again it has been awhile since I blogged LOL. Of course, this is a new year with new resolutions and hopefully one of them will be to write more, whether it is actual stories or blogging. And since we are only a day into the new year I'm going to try to start off right.
Trio had a good Christmas as usual. He go t his first bike which he loved because it was Buzz Lightyear and his first bike. He also got a V-tech laptop from KaCee and those were pretty much his "big" gifts. He got a few other things as well such as more Mobi games, cars (lots and lots of cars) socks, clothes, and made from love stuffed monsters. The only thing about Christmas with kids is you have to purge first or after which we still need to do. Just need to find out where to throw all the old stuff like as Nica's old vanities, kitchens, etc. Also his birthday is just around the corner so we defintely need to make more room. Oh well...such is the life of a parent.
In other news his dentist appointment oh so many moons ago went weel. He had a lot of work done but the dentist told us that it looked like he had a a predisposition to having bad teeth so I didn't feel too terrible. But pretty much all of his teeth got caps and two got pulled :( But he is fine now and it is just a matter of keeping up to date on his dental health. He kind of looks like the Bond villian with the silver in his mouth. And he has bitten me once (a little accidentially) and that hurt so woe to the first kid who he bites at school.
School is going great. He is loving it and he is talking more and more each day. Recognizing some words I think which is a big shock to me. He has always been good with letters, numbers, and shapes but now we are also looking at words and starting to know what they are if he sees them regularly.
He is also a dancing fool. There have been many videos of him dancing to the Michael Jackson experience and if you start a song he will start dancing along with it. It is adorable and also makes me want to get him into some kind of dance class to put that enerrgy to good use plus if he wants to dance he can. He can dance if he wants to...he can leave his friends behind. ;)
And that is it for now. More later on the wonderful boy that is mine.
Trio had a good Christmas as usual. He go t his first bike which he loved because it was Buzz Lightyear and his first bike. He also got a V-tech laptop from KaCee and those were pretty much his "big" gifts. He got a few other things as well such as more Mobi games, cars (lots and lots of cars) socks, clothes, and made from love stuffed monsters. The only thing about Christmas with kids is you have to purge first or after which we still need to do. Just need to find out where to throw all the old stuff like as Nica's old vanities, kitchens, etc. Also his birthday is just around the corner so we defintely need to make more room. Oh well...such is the life of a parent.
In other news his dentist appointment oh so many moons ago went weel. He had a lot of work done but the dentist told us that it looked like he had a a predisposition to having bad teeth so I didn't feel too terrible. But pretty much all of his teeth got caps and two got pulled :( But he is fine now and it is just a matter of keeping up to date on his dental health. He kind of looks like the Bond villian with the silver in his mouth. And he has bitten me once (a little accidentially) and that hurt so woe to the first kid who he bites at school.
School is going great. He is loving it and he is talking more and more each day. Recognizing some words I think which is a big shock to me. He has always been good with letters, numbers, and shapes but now we are also looking at words and starting to know what they are if he sees them regularly.
He is also a dancing fool. There have been many videos of him dancing to the Michael Jackson experience and if you start a song he will start dancing along with it. It is adorable and also makes me want to get him into some kind of dance class to put that enerrgy to good use plus if he wants to dance he can. He can dance if he wants to...he can leave his friends behind. ;)
And that is it for now. More later on the wonderful boy that is mine.
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